Only thing I wanted to ask God was... HOW? How do I do that with a broken heart?
I will always struggle with the why. Why did he take my son? 11 hours isn't nearly enough to fit a lifetime's worth of love in. The only memories I made with him were painful ones. Dreams were shattered. Faith was lost. & I wasn't strong enough to just sit back & go, "OK, God... I trust you." Because I didn't. How could I trust a God that let babies die when their parents so desperately wanted them to stay?
I may never know the answer to that.. at least not until I stand before him & say, "Hey, what was the deal with that?" I have come to the understanding in my soul that I was chosen, specifically, to be Dexter's mother. A measure of a mother is not in the years of raising she accomplishes, or how many school lunches she makes at home or how many PTA meetings she attends. The measure of a mother can't even be seen. It's an individual, PERSONAL understanding between that mother & that child. My friends who have only know children who went to Heaven .. they are some of the best mothers I know. They may not have had sleepless nights with feedings & diaper changes. Or kissed away boo-boos on scraped knees. But they have had sleepless nights missing their precious baby. Kissed away tears from their partner's cheeks. They celebrate birthdays & anniversaries.. even at a grave site. These women... they are amazing mothers. Because they don't just express their love for their children by hugs, kisses & presents. They do it by waking up every morning, breathing & LIVING. They are LIVING TRIBUTES in honor of their children.
On a good note. I have felt really good the last few days. I am enjoying all my moments with Milo. He loves to be held against my chest & sleep. I love hearing his coos & seeing his beautiful eyes. He is so alert. He's started making noises that aren't cooing or crying.. so that's amazing. He DID get diagnosed with acid reflux & now he is on Zantac for that. I am hoping it kicks in soon. This Thursday he has a cardiologist appointment for a follow up. The first one since he left the NICU. I am .. apprehensive. I am praying that we just get a thumbs up & that he's doing fine & see you next month. When he went to the respiratory doctor (to get a referral for the RSV shot) .. they checked his sP02 level & it was 99.. which is exactly what I want to hear. I just hope everything will be okay. We don't see the geneticist 'til December. But I am not really worried. So far his eye doctor had no concerns. Hoping the cardio has none either. Maybe you can say a little prayer that his appointment goes well & is uneventful.
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